Monday, 17 January 2011

  • A Little Encouragement Can Go a Long Way...

    Our son is Autistic. He's considered high functioning so we were lucky that he would have speech, and be able to potty train. Don't get me wrong, none of that came easy by no means, but it did eventually come. And we were thankful for each victory as you have to be when dealing with these little battles.

    Flash forward, he's 14 now; we signed him up for adaptive phy-ed bowling last year when he hit middle school 7th grade. The coach came to us & said she thought it would be a good thing for him to try. He did NOT want to do this - but I kind of made him. I know, sounds bad - but he really needs to be pushed into social situations. He bowls with kids from 7th grade up to 12th grade & they are all kids with different abilities. He sees his younger sister who is a social butterfly, get invited to parties & sleep overs all the time, he sees his younger brother enjoying the same. He has only gotten 2 birthday party invitations and they came in 2nd grade & 4th grade. He gets frustrated that no one invites him to their house, no one asks him to sleep over. I have to explain to him, you have to make a friend first. He bowled all last year & got to know a couple of other boys, but not too indepth. Autistic kids want to talk about what they like, not what the other person likes. So when you are socially underdevoloped, it's very difficult to make a friend. I would tell him to ask the boy what he likes, ask the boy if he plays video games, ask the boy if he saw that movie too, ask the boy if he likes Legos also. Ask the boy his name and remember it. These things aren't a big deal to most people, but for a child with Autism, it's like a foreign language!!

    He lettered in bowling last year and all he had to do was bowl & finish the season which he did. He couldn't remember anyone's name, but did talk to some boys about some topics of interest. I told him we will sign him up to be on the team again this spring. He's again, not really thrilled about it. I told him he kind of needs to do this in order to make a friend. He got a lettermen's jacket for Christmas from us - he proudly wears this & knows what a symbol it is. So I told him in order to continue to wear that jacket, you need to be in that sport. And we are practicing conversations in hopes of inviting a friend over sometime that he hopefully will get to know this year during the bowling season. I do these types of things keeping in mind that someday, we will no longer be on this earth for my son to lean on. He will need to learn this difficult task of getting to know people on his own. I want him to have a good life and be able to maintain friendships because they will be as important to him someday as they are to the rest of us.

    Little victories are all we can ask for, it's all we can hope for. And all I have is hope for my children, so I will continually push them when I know it's going to help in the long run. Love comes in many forms, and I've been told by many that I'm too strict, but my kids have manners and when I ask them to try, they do because as my kids say, "Mom, you were right."  And I don't care about being right, I care about them being successful in their lives.

Friday, 24 September 2010

  • He's turning 14 this weekend!

    Don't know how 14 years have gone by so fast! I will never forget the day we sat in the Pediatrician's office and was told he believed our first born child, whom we struggled to have, was Autistic. Of course he could not officially tell us that, we had to go to a specialist to have our son tested. I began to cry. My husband just looked at me and couldn't understand what the big deal was (at the time) because this dr just said he's not licensed to diagnose the boy. But if he's recognizing what I was thinking, which was something is not right...then chances are, he's on the right path. At that time, Rainman was all I knew about Autism spectrum.

    I looked at my son through teary eyes and began to wonder about the future for him. We use to joke about the kind of car he would tear around in as an older teen, causing us problems, girlfriends he would have that I would not approve of, sports he would be good at because they projected his size to be bigger then his father, who is 6' 3" tall.  What he might like to do for a career...what does this mean now?

    The visit to the specialist, now that was a weird experience to say the least! We sat in a tiny room - we were on chairs & he was left to wander around in this small space near us with this dr. just watching him. Once in a while the dr. would say his name & ask him to "hi five" him, which he did. That went on for about 15 minutes & then we left with the diagnoses that he was high functioning PDD. WHAT?! You can tell that from that little meeting? 

    We immediately put him into special therapies as soon as we could. He was 2 1/2 years old at the time, so he was able to get into the school district quite soon for speech & physical therapy. He did not like either of these at first, but then it became the routine and it did cause improvement for him.

    We are very fortunate that he progressed so far over the years. I just didn't 'get' Autism back then. So I treated him more like every other kid and he was expected to behave & to try foods I put on the table. Our rule was he had to take one bite and then I'd leave him alone. The dr.'s told me it was actually a good thing I did that, because it made him able to handle different textures much more then most kids on the spectrum. He was very sensative orally and would gag when trying something new, but he would do his best every time and that's all I expected. 

    So he's turning 14 on Sunday...he is 6' tall, is about 160 pounds - basically much bigger then me! But he is my gentle giant. My walking stomach that eats like a machine which is typical for his age. He's in 8th grade and has specialty classes, but then is integrated with the 'regular' kids in certain classes that he excels in, such as science & art. He has an amazing talent for seeing something once, then drawing it. Such as a creature or robot. He loves oragami and can do complex creations with that. He's quiet unless it's a subject he is interested in, then watch out because he'll talk your ear off! And this is the boy, I worried would never speak, would never say I love you Mom, would never show love to me in the form of hugs or kisses. I couldn't have been more wrong...

lizgreene

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